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Just the highlights 🎞️
London
Mum to Rudy & Dex ✨
Real life over on @rudysw0rld
Medical Mama 🪄
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Go get em Rudy! First ever “first day of term” and look how happy he was 🥰 So proud of you xxxx
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Last day of August was amazing 🌅⚓️
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💥SUPER SIX! 💥Happy Birthday to our beautiful, happy, shining star! 🌟 6 years of being your mummy has not been for the faint hearted! But you make my heart burst with pride every day, and bring a smile to the face of anyone that meets you. It’s been such a joy to watch you thrive at school. The sky’s the limit now kid, and we can’t wait to see what’s next. Happy Birthday Superstar! We love you xxx 🚀🎂🎈💥🌟 #BirthdayBoy #SuperSix #RudysWorld
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I heard somewhere just start it now and perfect it later and that’s what I did 🤍

#founderstory #newpodcast #founderjourney #reallifestories #personalgrowth
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In this episode of Everything Changed, I am joined by my friend Nicola, who bravely shares the reality of raising her son, Rudy, who lives with MCAHS1, an extremely rare genetic condition that causes epilepsy, visual impairment, and profound physical disability.

In this episode we discuss:

• The COVID diagnosis
Navigating the terrifying first weeks of lockdown while realising something was wrong.

• The genetic ‘spelling mistake’
Finding out both she and her husband carried the same rare gene.

• Survival instinct
Why she had to emotionally detach from her second pregnancy to survive the weight of a potential second diagnosis.

• Milestones vs inchstones
The beautiful, small victories that mean everything.

The full episode is available to listen to now, on Spotify, Apple Podcast (link in bio) 

✨ Thank you @revitalashuk for sponsoring @everythingchangedpodcast. Use the code ROSIE20 for 20% off at www.revitalash.co.uk 

#raregeneticdisorders #mcahs1 #epilespy #motherhood #resilience
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