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Posted On: October 27th 2026, 05:04 pm
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At 16, Betty turned down a boarding school offer. George wants to play football and basketball, but his mother worries about the physical risks. Both teenagers are living with sickle cell disease, navigating the delicate balance between staying safe and growing up.
Their stories raise an important question: how can families and schools protect young people with sickle cell disease without limiting their independence, friendships and ambitions?
From stigma and daily care to school support and emerging treatments, their experiences highlight the need for understanding, informed care and room to thrive.
Read Juliet Akoth’s forthcoming story, “Growing up with sickle cell: Making room for independence,” coming soon on RemoteReporter.
Reel by @calledamayindi
#SickleCellDisease #HealthJournalism #YouthHealth #LivingWithSickleCell #RemoteReporter
Their stories raise an important question: how can families and schools protect young people with sickle cell disease without limiting their independence, friendships and ambitions?
From stigma and daily care to school support and emerging treatments, their experiences highlight the need for understanding, informed care and room to thrive.
Read Juliet Akoth’s forthcoming story, “Growing up with sickle cell: Making room for independence,” coming soon on RemoteReporter.
Reel by @calledamayindi
#SickleCellDisease #HealthJournalism #YouthHealth #LivingWithSickleCell #RemoteReporter
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