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Sharon Browne-Peter | Sickle Cell Advocacy

@sharonbpeter

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Sickle Cell Disease Advocate | Founder: @coagcomics
God is good ✝️

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Still reflecting on the honour of delivering a keynote at the Sanius Health Haematology Patient and Carers Congress 2026.

Sharing my story alongside leaders, clinicians, researchers, and healthcare experts from across the NHS and haematology space was incredibly meaningful.

Thank you to @sanius.health for creating space for patient voices within these conversations.

And a special thank you to Muna, Reia and Suaad for your warmth, support, and belief in my story throughout the process ❤️

One of the biggest things I wanted people to leave with was this:

Clinical trials are not just statistics or outcomes. They are very real and life-changing for patients.

Behind every percentage, every result, and every piece of data is a person trying to reclaim their future, identity, and quality of life.

For me, clinical trials helped get Sharon back 🫶🏽 taken in London, United Kingdom by @sharonbpeter

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5 months ago

Honoured to have represented the 90 Youth Voices at the @britishcouncil’s 90th Anniversary Gala. Sharing my journey and celebrating the incredible impact of young leaders, my desire was to inspire hope and connection for anyone who sees themselves in my story.

‘When we share our truths, we create bridges—between communities, between cultures, and between generations.’

A heartfelt thank you to the @britishcouncil team for the opportunity to speak on such a meaningful evening.

#BritishCouncil90Years #90YouthVoices by @sharonbpeter

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2 years ago

Absolutely nothing could’ve prepared me for what happened on Friday. I’m still reeling — in the best way. Honestly, if I didn’t know better, I’d think you planned the launch of The Lifeline Conversations because it was that good… and I know it wasn’t me!

Jokes aside, I’ve been to so many events centred around Sickle Cell — but this one? This one hit different. And I say that not just as a guest, but as the actual event producer. I walked away with so much, and I genuinely believe every single person in the room did too. That was my goal, and it means the world to see it land.

The documentary alone is powerful — a must-watch if you want to understand Sickle Cell and blood donation (now available on YouTube). But the event added a whole new dimension. From @DialecticDee’s moving spoken word to the brilliant panel, every element brought depth and realness.

We got into gene therapy with @debz_oj, explored life with Sickle Cell outside the UK (especially in Nigeria) with @naijadaydreamer @haima_health, reflected on life with the condition over 60 through @sicklecellmystory’s stunning visual art, and soaked up so much rich context from the host of the night @mistaralvin as well. And the Q&A? Easily my favourite part. Questions flying everywhere — the energy, the curiosity, the desire to keep the conversation going… unmatched.

I’m just so grateful. Grateful to everyone who believed in me and @coagcomics. Grateful to the team who made it all come together especially @ourppls @ayosartofgiving. Here’s the truth: we need more people to believe in what we’re building @coagcomics so please follow us! This event was just the beginning. It scratched the surface, but it proved there’s so much more to uncover when it comes to the lived experiences of those with Sickle Cell.

Let’s keep going. Please donate to the go fund me in my bio dedicated to helping people in Nigeria dealing with this condition. taken in Kindred by @sharonbpeter

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2 years ago

This Sunday is the fourth and final Liberation, Cell by Cell session at Enfield Town Library in partnership with COAG Comics.

We’re closing the month by talking about something that affects so many people living with chronic illness and disability: stress, inflammation, pain and fatigue.

We’ll be exploring:

How stress can affect inflammation, pain and energy

How naturopathic approaches can support the body and help reduce pain and fatigue

Practical ways to create better conditions for your body to function

How to advocate for yourself when you are living with a disability or chronic illness

How to communicate what you need when you are not being heard, believed or taken seriously

Sunday 27th September
1pm to 3pm
Enfield Town Library

Free to attend, with refreshments and practical resources to take home.

You do not need a diagnosis to come. You do not need to have attended the previous sessions either.

Come as you are. Sit, rest, leave the room and come back if you need to. Listening counts too.

One final Sunday. One more conversation about living better in a body that needs more care.

#LiberationCellByCell #SickleCellAwarenessMonth #ChronicIllness #ChronicPain #Enfield by @sharonbpeter

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13 days ago

Ubele in Focus: What You Don’t Always See.

For Sickle Cell Awareness Month, we spent time with @sharonbpeter Programme Coordinator at Ubele, to hear more about what it’s like to live and work with sickle cell — and the work she’s doing to create greater awareness beyond Ubele.

Over the weekend, we joined Sharon at an event hosted through her organisation @cellsofageneration where she screened her documentary exploring experiences of sickle cell and shared her comics @coagcomics

After the screening, we sat down with Sharon to talk about navigating her role at Ubele, running her own organisation, and using her experiences to create spaces where people living with sickle cell can feel seen, heard and supported.

Sharon also shared what she wishes more people understood about living and working with sickle cell:

“The effort it takes to show up can be invisible.”

This is her story, in her words 💜

#UbeleInFocus #SickleCellAwarenessMonth #SickleCellAwareness #TheUbeleInitiative SelfSovereignRegeneration taken in London, United Kingdom by @sharonbpeter

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14 days ago

This Sickle Cell Awareness Month, we're taking the conversation into the community across North London.

🩸 BLOOD DONATION DRIVE
Saturday 19th September · from 5pm · Dugdale Arts Centre, Enfield
A screening of The Lifeline Conversations, followed by a panel discussion and Q&A. Blood bank partners will be on site so you can register as a donor on the day. Bring one willing donor with you!

You'll learn:
✔ The facts behind the myths, including malaria antibody deferrals and sickle cell trait eligibility
✔ Why ethnically matched (Ro subtype) blood matters so much for sickle cell patients
✔ How to find out your own status and where to get tested
✔ How to start the donation conversation with family and friends

🥬 BUILD BLOOD: HOW TO COMBAT ANAEMIA
Sunday 20th September · 1pm-3pm · Enfield Town Library
Many willing donors, especially women, are deferred for low haemoglobin or iron. This session makes a deferral a delay, not a dead end.
✔ Ferritin vs haemoglobin, and why donors get deferred
✔ Iron-rich, culturally familiar foods
✔ Absorption enhancers and blockers (vitamin C pairing, tea and coffee timing)
✔ How menstrual losses affect your iron
✔ A realistic 12-week "donor-ready" nutrition pathway

Know your status. Be the match. Bring someone who can give.

👉 Book your place:
Sat 19th @ Dugdale: https://www.dugdaleartscentre.co.uk/whats-on/liberation-cell-by-cell-life-line-conversations-sickle-cell-blood-donation-community

Sun 20th @ Enfield Town Library: https://www.eventbrite.co.uk/e/liberation-cell-by-cell-tickets-1998212560559?aff=oddtdtcreator

👉 Register as a blood donor: https://www.blood.co.uk

#fypinstagram🥀🙏🏻✔️🙏🏻#⃣*⃣#⃣*⃣#⃣*⃣#⃣*⃣#⃣*⃣#⃣*⃣#⃣*⃣#⃣*⃣#⃣*⃣ #sicklecell #BlackBloodDonors #BloodDonation by @sharonbpeter

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20 days ago

Keep going ❤️🩸 #giveblood taken in London, United Kingdom by @sharonbpeter

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20 days ago

Meet @dialecticdee, @king_meekly, and @sicklecellmystory. In this conversation, they speak with blood donor, Victor, about how blood transfusions and exchanges have impacted their lives while living with sickle cell disease.
A @nuviefilms_uk production.
The Lifeline Conversations is designed to amplify awareness and education for blood donation for the next generation.
This programme is a resource for educators and communities to inspire potential blood donors, with a particular focus on black young adults.

Join us for at @dugdaleartscentre for a community screening and panel discussion to mark Sicklecell Awareness month on the 19th of September.
#TheLifelineConversations #COAGComics
#SickleCellAwareness #Community #sicklecell nhsbt
OurPpls giveblood by @sharonbpeter

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22 days ago

This is a BIG weekend for us at @coagcomics and @cellbasednutrition ! ❤️🩸

We’ve spent September learning, asking questions and having honest conversations about sickle cell, our bodies and our health. This weekend, we’re bringing it all together with TWO events.

🩸 SATURDAY 19 SEPTEMBER - IT’S IN OUR BLOOD
Join us at Dugdale Arts Centre for a special screening of The Lifeline Conversations, followed by conversation, Q&A and a deeper look at blood donation - including why ethnically matched blood matters for people living with sickle cell and some of the myths that can stop people from donating.

🥗 SUNDAY 20 SEPTEMBER - BUILD BLOOD
Then we’re back at Enfield Town Library @cellbasednutrition to talk about anaemia, iron, haemoglobin and nutrition. We’ll take a special look at why people can be deferred from donating blood because of low haemoglobin and practical ways to build and support healthy iron levels.

Whether you live with sickle cell, love someone who does, want to become a blood donor or simply want to learn more - you are welcome.

Come for the information. Come with your questions. Come ready to learn and take action. ❤️

🎟️ Both events are FREE. Book your place:

https://www.dugdaleartscentre.co.uk/whats-on/liberation-cell-by-cell-life-line-conversations-sickle-cell-blood-donation-community

https://www.eventbrite.com/e/liberation-cell-by-cell-tickets-1998212560559?aff=oddtdtcreator

#LiberationCellByCell #SickleCellAwarenessMonth #SickleCell #BloodDonation #GiveBlood Enfield taken in Dugdale Arts Centre by @sharonbpeter

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22 days ago

It’s @victornimakoart’s birthday ❤️
Loving you is so easy and I’ll never stop thanking God for bringing you to me 🥹.
#happybirthday by @sharonbpeter

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23 days ago

What a way to start Sickle Cell Awareness month! ❤️

Our first Educational Sunday was full of honest conversations and so many questions. Jael led us through the session about knowing our cells, and what made it so special was how much time we spent simply talking about sickle cell, sharing knowledge and learning from one another.

Everyone left knowing something they didn’t know before, and that’s exactly what we wanted from this month.

Next Sunday, we’re back for Nourish to Flourish 🌱 - getting practical about nutrition, hydration, supportive foods and how what we eat can support our bodies through pain and fatigue.

📍 Enfield Town Library
🗓️ Sunday 13 September | 1-3pm
🎟️ FREE - Eventbrite link in our bio.

One Sunday down. So much more to come. ❤️ by @sharonbpeter

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a month ago

It’s Sickle Cell Awareness month this September and we’re working on our nutrition!

Register on Eventbrite 🙌🏾

Throughout September, @cellbasednutrition will be hosting a series of FREE Sunday workshops at Enfield Town Library.

📍 Enfield Town Library
⏰ 1pm–3pm every Sunday
🎟️ FREE to attend

We’ll be giving attendees practical tools, healthy refreshments, take-home resources and a supportive space to learn together.

Plus, join us for a special screening of The Lifeline Conversations 🎬

📍 Dugdale Centre
🗓️ 19 September | 5–8PM
🩸 Panel discussion, Q&A & blood donation awareness

@enfieldlibraries
#SickleCellAwareness #ChronicPain #ChronicFatigue #Nutrition #Enfield coagcomics cellbasednutrition by @sharonbpeter

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a month ago