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barelyregulated

@barelyregulated

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🫶🏻Clothing those doing their best
🩷Creating resources for caregivers
👩🏻‍🦰Special Needs Mom Owned @mycoachlacy
☔️Shop in stock ⬇️

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Happy Birthday Sparky, we love you.

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Which one is most true for you?

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PS: we do need community and my community has a challenge starting Tuesday. Comment PLU to join us.

#specialneedsparenting #severeautism #nonverbalautism #autismmom #cpmom

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When my 13 year old daughter with cerebral palsy came to me with a t shirt design she made with her art teacher, she said “every kid should have one of these”.

And I don’t disagree.

Comment LIENNA to pre-order her the limited edition “born to be unique” design.

Sure, you could buy something that says “be kind” for $7 at Target. But this shirt actually matters…

Why?

1. It supports a little girls dream of being a known artist.
2. It supports a small business that gives back to the caregiving community.
3. It teaches your kids what matters.

Can’t shop? Share, it’s free.

🫶🏻🩷

#cerebralpalsyawareness #disabilityawareness #specialneedsfamily #cerebralpalsykids #wheelchairgirl

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A good reminder for parents AND kids. Kindness is not a word on a journal or a t shirt.

It’s a choice.

A daily one.

And it starts at home with the parents educating but also…

By parents being kind to other parents like me.

Supportive. Inclusive. Educated.

Kindness is not a slogan.

It’s not a trend.

It’s a daily decision.

🫶🏻🩷

PS: you can support my daughter Lienna’s “Born to be Unique” clothing designs by commenting LIENNA below.

#specialneedsmom #autismmom #severeautism #cerebralpalsy specialneedsfamily

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Lienna and her art teacher @justinebenzingerdesign worked hard the last few months on clothing designs and her first t shirt “born to be unique” is on sale for pre order now.

Help a young artist by comment Lienna below to shop!

🫶🏻🩷

#cerebralpalsyawareness #wheelchairgirl #youngartist #youngartists #wheelchairartist

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Would you eat this?

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If I see one more autism mom do this, I’m going to…

CLAP 👏🏼 !

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People often share the really hard about life AFTER they’ve gone through it. It’s a reflection once something is done. I’m parenting autism + cerebral palsy + 8,000 other jobs all at the same time right now.

And it’s hard.

I knew when we decided to move in January that this would be tough. But I kind of felt like the packing and physical moving of US was the hard part.

When we got here, that proved to be Child’s play compared to the thousands of pages of paperwork and coordinations I’ve had to endure.

And endure is the word.

I joke that I disassociate by doing my actual job as a consultant.

I live for the times I can be on calls with my clients or creating content and marketing plans because it’s the only part of my life that feels normal right now.

And until the girls go to school in 2 months, I’m a full time caregiver home with them 24/7 managing their daily needs and cooking 8.75 meals a day+ snacks inside of a 1500 sq foot condo that feels like the walls are closing in some days.

Anyways…

I say this and share this because I know that a lot of the Moms here are living a similar life.

Wearing 80 hats and living inside a maze of paperwork and appointments trying to get their kids what they need during the summer months when their kids are home to boot.

What do I do for myself in this season? To cope?

I still read every night. I have watched OFF CAMPUS twice. I have a snickers ice cream bar every day. I walk around somewhere at least once a week in utter silence. I try (and fail) to get at least 7 hours of sleep a night. I communicate to my husband when he gets home at the end of the day that I am DONE after dinner and…I am done.

If you’re in a particularly hard season, remember, it’s a season. It can feel like forever. And that feeling is heavy.

I don’t know what the point of dumping this all here is except to bring light to what it really looks like inside our lives.

Give Grace. And if you have a friend like me, check on her. It matters.

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Most CPAs look at your business but a good one looks at your whole life.

Because when you have a business but also care about

Estate planning
Paying your kids
529 plans

Things are more complicated.

And keeping money in your pocket becomes even more necessary.

Not to mention there may be medical and life expenses that are entirely deductible.

When we initially sat down, I asked her questions no one else had before. Even CPAs she had trusted for years.

If you have a business, you need someone that goes the extra mile.

If you have a business and any family situations that make things complex…thawing the right CPA in your corner is not a perk, it’s a necessity.

#certifiedpublicaccountant #taxdeductions #smallbusinessowner #womeninbusiness #specialneedsplanning

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Don’t ask me about my crash outs lately. Parenting a tween with severe nonverbal autism + a teen with cerebral palsy about to have surgery is no effing joke.

If I’m an animal, some days I’m the graceful lioness and some days I’m the drunken raccoon digging through the fridge trying to find a snickers ice cream bar to eat in silence while I contemplate my life choices and wish I was 27 again drinking a whisky and Diet Coke with my only worry being if my boss was going to be an asshole the next day.

Life. Comes at ya fast.

Woof.

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#specialneedsmom #autismmom #severeautism #nonverbalautismawareness #specialneedsparenting

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I used to be someone that loved to be social and having a drink or 4 on the weekend was something I looked forward to. And then I had a child diagnosed with severe autism.

Nowadays?

I often don’t want to drink because even one mixed with perimenopause can make me too grumpy to do all the things I need to do to be her Mom.

And I’m not saying drinking is good for you…(and smoking definitely is not) but sometimes I do think about all the things that I enjoyed doing that now feel like they have a cost.

A social outing that requires a lot of “peopling” can make me tired when the next day I might be woken up at 4am by a 12 year old that needs a snack and a diaper change and won’t go back to sleep.

I weigh every decision through the lens of being her mom.

And I know they say “don’t lose yourself”…

But the reality is we have to organize ourselves around their needs so much that it’s not about loss it’s about an entire identity shift.

If you live this life, it can be hard to understand.

Which is why I started a space for parents like us.

Want to join us this month for free?

Comment FIRST and I’ll share the details.

🫶🏻🩷

#specialneedsmom #autismmom #severeautism #nonverbalautismawareness #specialneedsparenting

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