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Liney and Mom

@boldspots

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A mom and daughter sharing the journey of Alopecia.

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CAROLINE!! 🫶😍 90 seconds of your time - listen and please share! Thank you, sweet Liney for advocating and using your voice for the entire alopecia community! 🙏💙

Repost from @boldspots
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Take 90 seconds and listen to Liney address the school board about Alopecia Awareness.

Then join us for our Walk on Saturday or donate to the @naaf_alopecia to support research and mentorships. (Link in bio)

#alopecia #alopeciaawareness #alopeciaawarenessmonth #WalkForAlopecia #baldisbeautiful

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Alopecia gave me my purpose in life, and I want to do everything in my power to give back to my community.

My story began at 15 years old. As a high school freshman, I was terrified of losing my hair and struggling with the social and mental challenges that followed. I endured countless painful treatments—steroid injections, PRP hyper-needling, and harsh creams. Eventually, I decided the pain wasn’t worth the hair.

Right before COVID, after finally growing my hair back, it all fell out again in the span of two weeks. During lockdown, I was able to find confidence through mentoring with @naaf_alopecia which completely changed my life. By fate and serendipity, I met my mentee Caroline and the Robberson family. Little did they know that the connection Caroline and I built would help me grow, too.

I thought, if a bald six-year-old could face this with such strength, then I could too. We inspired each other and created a lifelong relationship I’ll always be grateful for. Fast-forward almost five years, and I’ve had the privilege of watching both of @kates124’s girls grow up. Although alopecia is what brought us together, it doesn’t define our bond. Today, our conversations are about the excitement of starting middle school and high school.

Now, we are fundraising to empower even more people and to create a community where those with alopecia can truly thrive.

From losing my hair at 15 and believing the world was ending, to growing into the person I am today—advocating for confidence, connection, and community—I have walked this journey with the support and love of the people I cherish most.

I’m here advocating and fundraising for my community. If you feel inspired by my story or by my mentees’ stories, please consider donating through the link below or in my bio.
https://naaf.donordrive.com/participants/1509

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✨Absolute Magic in the Making✨

This is long overdue, but words can’t describe the impact the alopecia community has on my heart. My bald babies are the reason I get up on my toughest days—if they can face the world with boldness and bravery, so can I. Watching my munchkins grow taller and older makes me emotional about how quickly time flies.

I was diagnosed with Alopecia Areata in 2018 at 15 years old. Terrified for my future, I watched myself change in the mirror. Within a year, I lost 80% of my hair despite painful treatments—shots, needling, immunosuppressants, and creams. My hair grew back into a pixie cut, then, through loss and grief, I lost it all again in just two weeks.

At 17, I flew to Colorado to see @mollytuttle with my aunt and uncle (@rae.dubs @wlowrx). That night changed my life. Through Molly, I was introduced to the National Alopecia Areata Foundation (@naaf_alopecia) and began mentoring children going through what I once faced.

When I was diagnosed, I felt completely isolated except for my mom—my biggest support system through the medical maze and through life. I know that feeling is far too common. I want to change that, building a system where patients move from diagnosis → support → acceptance → self-love and confidence.

The NAAF community is vital for kids and adults navigating identity shifts. Kids camp, the talent program, and the dance gala create lifelong friendships and moments of pure self-love. These experiences showed me just how much of a difference I want to make in my community.

I wouldn’t be who I am without alopecia—it has allowed me to bloom into my own inner butterfly and love as many others as I can. These experiences became the chrysalis for a dream I’ve carried in my heart for years—Metamorphosis. 🦋
A vision to create something bigger, bolder, and more beautiful for my community than anything I’ve ever done before.

It’s time to break free, spread our wings, and transform together.

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