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Brielle Sullivan

@brielle_crps

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My Complex Regional Pain Syndrome journey to remission 🧡🎗️{CRPS, FND, POTS, EDS, GP}
•Dum Spiro Spero•
@brielle_angeline

POSTS STORIES REELS TAGGED

And the strawberry chronicle continues…. And this time with a friend who can now also eat the little red delights🤭🍓

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What’s better than unlocking a new safe food? Unlocking one with a friend! 🍓🍓🍓

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Spring break visit!

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Treatment Update🎗️There is a certain kind of grief in stepping away from the life you’ve built, but sometimes there is no choice. At the end of July, I had to step away from work completely — a job I poured my heart into for six years. It’s surreal to think that in my early twenties I’m navigating the reality of worsening health and forced to pause the life I once took for granted.

The past few months have been a whirlwind of emotions and challenges as my health worsens and I focus on healing and tackling the overwhelming costs of ongoing treatment. But through it all, I hold onto hope. In January, I will be returning to Arkansas to undergo treatment at the Spero Clinic—the only place where I truly began to see progress.

As part of preparing for this next step, I ask for your prayers. Prayers for provision, prayers that I’m able to find affordable housing (If you happen to know of any resources, or someone who could help, please reach out), prayers for healing, prayers for hope, prayers for peace.

Thank you for being by my side on this journey. 💜 Thank you for your prayers, for those of you who keep checking in, those of you who have come just to hang out in my room with me, and those who have sacrificed financially to support me.

#crpsawareness

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“You are exactly where you need to be”

That is my favourite life quote and affirmation ~ one that really got me through some very dark moments

As we all know, ‘comparison is the thief of joy’ (yes, that quote here was intended)

But comparison is also something we cannot avoid. Especially as young people with chronic illness

When I saw my friends go on with their lives, the way that I always expected to live life as well,

Of course you compare

So Quotes & Affirmations can help to stay close to yourself, to your own journey.

As @notyouraveragepsychic always say, ‘life is between you and you’

I’m currently writing a blog post, combining as many Quotes & Affirmations as possible

There will also be a template available so you can add your favourite and share it on your socials

To remind others about your journey

And to remind yourself that you matter, you belong and you deserve to be happy!

So what are you waiting for ~ leave a comment so we can all help each other out!

#healingjourney #selfcare #selflove #eds #selflovequotes #selflovefirst #quote #quoteoftheday #spoonies #spooniescommunity #quotes #lupus #fibromyalgia #depression #flareuptoolbox #nervoussystemregulation #nervoussystem #takingcareofme #endometriosis
#chronicpain #chronicpainwarrior #autoimmunedisease #pots #disability #health #chronicallyill #crps #anxiety

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Heartbroken but thankful; hurting yet continuing to heal.

If you have been following my journey, you know that I have spent the last year in Arkansas receiving medical treatment with the hopes of going into remission from Complex Regional Pain Syndrome and several other comorbidities. Before I started, I was fully aware that remission was not a guarantee, yet, I was so hopeful that I would be leaving Arkansas after 3-4 months of treatment in complete remission; unfortunately, that just wasn’t the case.

Through hours and hours of careful consideration and prayer, I believe it is time to come home. Though I am confused and heartbroken, I am trusting that God knows more than what I can see. I walked through this year with so much hope, and I would be lying if I said leaving hasn’t caused that to waiver, but I am continuing to hold onto Jesus as my hope, celebrate all wins that have been accomplished, and believe that miracles are still possible.

I am beyond grateful for the treatment that I have been able to receive and the team that has worked diligently beside and for me. There are SO many areas in which I have made drastic improvements and I will never regret the time or money spent here in treatment. In anticipation of going home, I have worked with my team and we have come up with an at home treatment plan with which I can continue pursuing remission with, and if needed, I know I can always come back in the future.

Although I am leaving Arkansas without obtaining complete remission, I am leaving with more knowledge about how to deal with my health, with lower pain and better function, with a medical team that has fought and continues to fight for me, with people that have turned into family, and with a with a community that understands.

The last 8 years, and specifically the last 5, have been the hardest and most lonely I’ve ever walked through, and this diagnosis has impacted my life in every way. Though I wish more than anything that this part of my story was over, I’m choosing to believe it will be one day.

So, I am heartbroken that this journey continues but I am thankful for the progress and for the people who have fought continuously for me🤍

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• F R I E N D S •

When you are going through a hard time such as battling a chronic illness, having a strong support system is essential. When I was in Arkansas, I met so many people who I had the privilege of getting to know and love. Everyone pictured is battling a chronic illness. Most of us have CRPS along with other diagnoses such as EDS, Gasteoparesis, POTS, and more. These people are some of the strongest people I know and I am so very thankful for each and every one of them!🧡🎗️💪🏻

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https://burninglimb.networkforgood.com/projects/163825-help-brielle-at-the-spero-clinic

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SO thankful for someone to go through this process with, achieve new goals with (whoop whoop new shoes), and watch SYTYCD with;)

#newshoeswhodis #teamkeatonandalexis

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