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Hannah | Millennial Boy Mom | SAHM | Caregiving

@hannah.lowe.c

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Finding joy in life through dark humor & being weird
Rare disease parenting | SAHM=Stuck At Home Mom
Founder $2M nonprofit | ex-IB
📍HTX, UGC, Shop👇

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This has become our waiting room tradition: “dribble dribble dribble shoot!” With Austin as the ball. 🏀

But he’s getting bigger and it’s getting harder and he’s still obsessed with it. What’s a mom to do?!

I remember how sad my older son was when I stopped carrying him routinely and since Austin can’t run and jump and get around himself, I want to make this stuff last as long as humanly possible 🙏💗

👇Have you had any of these little moments where time seems to move on and you have to give something up?! Were you sad? Mixed feelings?

#lmna #lcmd #raredisease #musculardystrophy #austinstrong sahm - stuck at home mom - little moments - finding joy - disability parenting - midlife mom life

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How many things can we cram into a day?
A typical day looks like breathing treatments, therapies, schooling, tutoring, homework and G tube feeds for him. Working out, emails, social media, foundation admin, and managing all his stuff and household chores for me.

I feel like we rocket out of bed and fall back into bed at night exhausted.

Even the snatches of “free time” are filled with further logistics: ordering groceries, paying bills, making appointments and taking a shower.

Sometimes I want to just sit and stare at the wall. But then that wouldn’t be productive now would it? 😜

#musculardystrophy #raredisease #lcmd #lmna #disabilityparenting SAHM (stuck at home mom) day in the life - Muscular Dystrophy Awareness Month

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Austin’s (my 7 year old with muscular dystrophy) bedtime routine is fairly typical:
Bath, story time, toothbrushing, kisses

Some additional activities:
💚cough assist machine - like PT for the lungs
💚suction - sucking out any secretions loosened by cough assist
💚ventilator - he sleep with “elephant” (what we call his gray mask and tube) to help ensure he’s getting enough oxygen while he sleeps. If he doesn’t wear it all night he complains of a headache the next day

Also, the elephant in the room being: he’s never going to do any of this independently. We will carry him, bathe him (in a special chair), change his clothes, brush his teeth, etc etc forever.

In many ways it all just feels like the normal routine now. He still gets to play and be silky with his brother, listen to stories together, share a room.

The biggest grief for me has been the fact that I can’t easily snuggle him in my lap while reading books. This was more a thought when he was little - about the time of life when I would have had my older son in the rocking chair for story time.

Now they’re both in their own beds and I’m in the rocking chair alone. But it’s still a cozy scene with our salt lamp and vocab word review 😜

What questions do you have about our routine?! 👇

#lmna #lcmd #disabledchildren #bedtimeroutine #millennialmom

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Meet Hannah 🤍

Mom to two little boys and a CAIT parent sharing how she stays on top of appointments, medications, and the countless little things that come with caring for her family.

CAIT helps her organize appointments, medication schedules, and daily to dos in one place. What she loves most is that it remembers what matters, helps her adjust plans in real time, and acts like a second set of eyes when she needs it.

Because parenting is already a full time job. Having support that helps you stay one step ahead can make all the difference. 🤍

Thank you @hannah.lowe.c for sharing your story.

#CAIT #CAITConnect #CaregiverSupport #MedicalMom #SpecialNeedsParent

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Adult Super Place Camp – Day 2

Today at Adult Super Place Camp, we learned about the Widow’s offerings. Mark 12:41–44

Allyson George, our Children’s Director, shared the lesson in such a beautiful and engaging way, reminding us that God sees and values every gift we bring—especially when we give from the heart.

We were also blessed by guest speakers Hannah Lowe and her son Austin, along with Lily Terrell, who each shared meaningful messages about what it means to give their all.

We ended the day with yoga led by our very own Lee Moffett.

It was another wonderful day at camp! 💙

#specialneedsministry
#bethelight
#mdumc
#aspc

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Our families showed up - standing beside their Game Changers every step of the way. 💙⚾️❤️

And our community showed up too… in a big way. Grandparents, aunts, uncles, neighbors, therapist, friends and church!

What you see here is more than support—it’s a glimpse of what the body of Christ looks like in action. A community that lifts one another up. A community that celebrates every victory and refuses to let anyone walk alone.

At MDUMC, we don’t just say “you belong”… we live it.
We will cheer for you.
We will celebrate you.
We will stand by you.

Love God, Love Neighbor

#specialneedsministry
#mdumc
#bethelight
#family
#gamechangers

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