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What started as a vision to create a space for a community that often feels overlooked became something much bigger than I could have imagined. 

Rather than separating us by conditions, I wanted to create a space that brought rare, chronic, & injured/burn survivor skin communities together, because while our conditions may look different, so many of our experiences overlap. The isolation. The questions. The misunderstandings. The impact on confidence and mental health. The need to feel seen. 

From our Patient & Creator Panel, where individuals courageously shared their stories and journeys, to our Dermatology Professionals & Founders Panel, where we talked about patient-centered care, innovation, representation, and the future of inclusive skincare — every conversation reminded me why creating these spaces matters.

And then there was the networking hour, watching patients, students, healthcare professionals, founders, creators, advocates, and allies meet one another, exchange stories, and form connections that I hope continue far beyond this one afternoon.

To every speaker who shared their story, every panelist who showed up, every partner who believed in this vision, and every volunteer who helped bring it to life, and every single person who walked through those doors — thank you. 🫶🏽 A huge thank you to @creativefuturescollective x Soho House program, my mentor Iman @forhersocialclub, and @beiersdorf @foundationforichthyosis & @phoilex.releaf for allowing this project come to life and @milkandhoneyspa for gifting our local speakers & volunteers/team members 

Most importantly, thank you to our rare and chronic skin community for allowing SKINRARE to be a small part of your journey.

Growing up, I wished there was a room like this. Now, I’m grateful that we’re creating it together. Rare belongs in every room & this is only the beginning.🤍 #raredisease #chicago
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