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Erin

@oneofthewanderers

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N0 CURE FOR ENDOMETRIOSIS right now 😢🎗❗️ ➡️ I stitch: ☆ @drjaymehta https://www.instagram.com/reel/Dea6BbHo8dS/?mdxt=aTJkbmJwazh2Ym52 ☆ @david_robert_grimes https://www.instagram.com/reel/DaAa1PSKfgY/?obrf=cXNjbW15aTR0anNx ☆ Rachel Chesshire @pinchiegram https://www.instagram.com/reel/DenhYE6hAl4/?rpxt=MTBnNXNzNWI2ZWZ2OA== ☆ healwithsonya https://www.instagram.com/reel/Deh_UMPIHp1/?psln=MWJ6YjhvaWdwYjJzcg== ☆ Dr. Andrea Vidali https://www.instagram.com/reel/Dee9CWlAqlI/?exln=c285bHQ5ejR5cjB3 ▶️ Other links: ☆ Dr. Mathew Leonardi https://www.instagram.com/reel/Dehe9AEuZPZ/?dlrf=MW9lcGVteWJvdWk5bA== ☆ Albertinen's endometriosis website @albertinenendometriosezentrum (endo centre in Hamburg, Germany) https://albertinen.de/abteilungen/fachabteilungen/gynaekologie/leistungsspektrum/endometriosezentrum/ ☆ Interview with Prof. Dr. Rüdiger Klapdor https://www.ardmediathek.de/video/visite/endometriose-was-hilft-gegen-die-quaelenden-schmerzen/ndr/Y3JpZDovL25kci5kZS9kY2JkMTFhMy1lYmZlLTQ1NjEtYTU2Ni03MTUyYmYxZWQwMGQ Yours Betty 🙋‍♀️🎗 @endometriose_stade #endometriosis
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STITCH WITH Prof. Dr. @george_condous & drmathewleonardi || SHOUT OUT TO: @doc_crestani & drsonysinghmd || MESSAGE TO: @schaefersebastian 🎗! The original posts by Prof. Dr. Condous & Dr. Leonardi were deleted (probably by them), but e.g. @endocircleo has got them in a current post: https://www.instagram.com/reel/DeQFgfJSL0E/?rpxt=eXoxY3BvbjRha3p3 TY Alexandra @endocircleo for providing me with their posts 🙏! Here are the links to: ☆ my Linkedin repost, under which Dr. Singh commented that they "haven't even gotten started" in Canada regarding endometriosis: https://lnkd.in/p/eJrftMhr ☆ Dr. Adrien Crestani's @doc_crestani post, where he admits that there are moments, when he doesn't always have an answer: https://www.instagram.com/reel/DeUbwYaoGaK/?vrfl=cmdjeGxwcWUycHph ☆ Dr. Mathew Leonardi's tt post, in which he admits that providers may also be wr0ng sometimes: https://vm.tiktok.com/ZGdCa8uHJ/ ☆ the Canadian endometriosis guideline no. 449 (2024): https://www.jogc.com/article/S1701-2163(24)00261-5/abstract ☆ the German endometriosis guideline (by DGGG e.V. et al., 2025, no. 5.1), which applies to Germany, Austria & Switzerland: https://register.awmf.org/assets/guidelines/015-045l_S2k_Diagnostik_Therapie_Endometriose_2025-10.pdf ⚠️ The German responsible ones of our guideline have to change page 103 of our guideline asap- at best, as I have suggested it here! If I forgot to add links, pls ask me 🙏. 🎗 ENDO PATIENTS DESERVE: RESPECT, HONESTY & TRANSPARENCY ! "YOU DEAL WITH PATIENTS' VERY LIVES" (quote by CEC). Yours Betty 🙋‍♀️ @endometriose_stade #endometriosis #changetheguidelines @sogcorg @wwendomarch
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"Hello, I'd like to know why U have chosen 0nly the female repr0ductive organs as a general symb0l for endometriosis here? Endometriosis is a wh0le body disease, that 0nly occurs outside the uterus, e.g. see American & European endometriosis guideline and it's n0t a woman's disease 0nly. It's even written in the European endometriosis guideline (by @eshre_official, 2022, p.8) that endo also occurs in ppl without uterus, without menstruation. So endo affects all ppl of all genders and of all ages. E.g. the father and uncle of @xny556__ had endo too (both c0nfirmed by bi0psy, they did n0t receive any h0rmonal treatment at the time they were diagnosed, both de3ad now) and e.g. @kitsblanc is a trans*man with endo. Just d0wnplaying it to a repr0ductive, peri0d issue 0nly (according to that picture) is framed t00 narr0w. can U pls do better? thanks. And pls read Chelsea Hardesty's @gettingthebetterofendo article "What If Everything We Thought About Endometriosis Was Wr0ng?": https://www.theinvisiblevoice.net/writersroom/what-if-everything-we-thought-about-endometriosis-was-wrong Chelsea is a research assistant too and also w0rks together e.g. with @camrannezhatmd (endometriosis pi0neer) & @wwendomarch. Moreover, @gettingthebetterofendo, @americanendofendoproject and their team have achieved an improvement for FY26 in USA and endometriosis is now described as a chronic, inflammat0ry and systemic disease. We are patients and it's you, Endo App, that sh0uld d0 so much better & according to our opinion, we carry your resp0nsibility 🥲. Kind regards, Bettina Behrens" ➡️ that's what I dr0pped as a comment under this post by the GERMAN ENDO App 🎗‼️ I AM SO TIRED OF ALL THIS 😪! GERMANY, DO BETTER REGARDING ENDO 🇩🇪🎗❗️ Yours Betty 🙋‍♀️ (key #endoadvocate) @endometriose_stade #endometriosis @dggg_ev @ag.endometriose @ag.endoskopie @lisibischnisi_endoianerin @kwschweppe @schaefersebastian @ingo_von_leffern @pinchiegram @endo.withparis @ellieandendo @chariteberlin @dr.matthias_engelhardt @albertinenendometriosezentrum @sylviamechsner @alinstefanconstantin @jorg_keckstein
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STITCH WITH @aaronparrymd // ST0P GASLIGHTING ENDOMETRIOSIS PATIENTS & D0 BETTER 🎗❗️ Thank YOU so much dearest @aaronparrymd for your permissi0n to do this stitch and U even got a new instagram account now, so that we can post this one here too 🙌! Take care 💛. Link to his original tt post: https://vm.tiktok.com/ZGd93TPwA/ He is aaronparrymd on tt. Yours Betty 🙋‍♀️ (key #endoadvocate) @endometriose_stade #endometriosis
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@ramcabreramd & @endoglobalgroup: we have questions regarding one of your latest posts- so regarding this one*: https://www.instagram.com/reel/DZSnyf3R3OH/?igsh=ajJ2ZDh3OTAxdDF0 ⚠️⬇️‼️update, June 20, 2026: Dr. Cabrera & Endoglobal Group took their 0riginal post down, but here is their complete video - I recorded it when it was still online on ig: https://drive.google.com/file/d/1aStGypTELJEmkpCQDhOAMg4OadOVGXyD/view?usp=drivesdk May U pls be so kind to answer all of my questions in my comment section bc I know that quite a lot of endometriosis patients are keen to hear your answers 🙏. The following link is about the classification system 2025 by FIGO @figo_hq & IPPS, which is named "R U MOVVING SOMe": https://obgyn.onlinelibrary.wiley.com/doi/full/10.1002/ijgo.70522 So according to the improved language for FY'26 (US): endometriosis is a chronic, inflammatory and systemic disease >> this is a win by Chelsea Hardesty @gettingthebetterofendo, @americanendofendoproject and their team 👏! And endometriosis also occurs in ppl without uterus, without menstruation according to the European endometriosis guideline (2022, page 8) by @eshre_official: https://www.eshre.eu/guideline/endometriosis P.s.: TY so much dearest @mysecretlifeofpain_ for also drawing attention to the ig post* by @ramcabreramd & @endoglobalgroup - I see U, I hear U, I believe U! Yours Betty 🙋‍♀️ @endometriose_stade #endometriosis
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Waiting… We are falling on deaf ears. #Changetheguidelines Petition LINK IN BIO 💪🏻 Happy International Women’s Day 🥰 We have a long way to go before we achieve true equality for the fairer sex and those who identify as such. Inequality and inequity are different things, we all have different perspectives on controversial topics that affect all of us. But one thing is for sure, whether it’s medicine or anywhere else - the powers that be aren’t not listening. So it’s time to educate and empower our own selves, help each other up, work towards understanding the other. So much to say, but nevertheless we persist. 💪🏻💪🏻💪🏻💐💐💐 #Internationalwomensday #Internationalwomensday2023 #Australia #Endometriosis #Endometriosisawareness #Extrapelvicnotrare #Endo #Chronicpain #Spoonie #Health #Medical #Petition #Excision #Goldstandard #Training
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Join us @avocabeachtheatre for an in person Australian screening of @endowhat Below The Belt for Endometriosis Awareness Month! WHEN: Tuesday, 28th March 2023 at 7:00pm AEST Following the personal stories of four patients urgently searching for answers, an experience so common in the lives of those who suffer with the disease. Affecting 1 in 9, the film shows how those with endo are often dismissed, discounted & disbelieved. We would love for you to join endometriosis patients, friends and family for an informative evening, designed to create change and open doors to better understanding the effects that Endometriosis has on over 190 million lives worldwide. In addition, we have a very special guest joining us virtually, all the way from a world renowned Endometriosis Centre in the USA. Help us to spread the word and join us at Avoca Beach Picture Theatre on Tuesday, 28th March 2023 at 7:00pm (please arrive 30-15 mins early.) xx Tickets will be available beginning Wednesday 8th March. There will be a post-screening Q&A discussion as well an interview with a very special person from @centerforendocare! Tickets available Wednesday 8th March, fb event link in bio! #Endometriosis #Endo #EndometriosisAwarenessMonth #EndometriosisAwareness #Australia #Centralcoast #Centralcoastnsw #Sydney #Newcastle #Spoonie #Chronicillness #Chronicpain #Adenomyosis #PCOS #Health #Medical #Coastfm Looking forward to meeting you all! 💛Annabelle & Alexandra 💛
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