Instagram story viewer> @swfaustralia> Tagged

Steve Waugh Foundation

@swfaustralia

4.4K

followers

25

following

The only stand-alone Foundation of its kind in Australia supporting children and young adults with Rare Diseases.

POSTS STORIES REELS TAGGED

Two legends… oh, and just arguably Australia’s greatest ever Test Captain (in ANY sport) in Steve Waugh, and one of the NRL’s top Chairmen (definitely top) in the great Nick Pappas! Ouzo Talk was proud to play a small part in helping the amazing guys at the @hfsc.2009 raise over $60k for the @swfaustralia ❤️. The Steve Waugh Foundation is doing incredible work for kids and families with rare diseases, but they need your help so more families can benefit! Donate today… and keep a look out for our episode with Nick Pappas… coming soon!

#charity #legends #cricketlegend

89

6

An incredible day was had by all at the 10th Steve Waugh Foundation Golf Day. The Sydney rain managed to skirt The Lakes for most of the day and the players were able to enjoy the full 18 holes. Their reward was a bottle of ‘05 & ‘15 Penfold’s Grange to share on the table! #penfolds #golf #charity

25

1

~ Celebrating 20 Years of Strength and Support~ We have just released a blog on our website capturing last years event- celebrating 20 incredible years of the Steve Waugh Foundation.

The work that @swfaustralia do supporting young Australians living with rare diseases truly inspires us. At the Bayard Foundation, we’re honoured to stand behind their mission — and to celebrate this milestone with a major contribution at the Forever Green Golf Day 2024.
 Read more about this legacy of resilience and hope on our website, follow the link in bio ✨
 #SteveWaughFoundation #BayardFoundation #RareDiseaseAwareness #StrengthOfCharacter #20YearsStrong

51

1

Today is World Rare Disease Day ! Im one of many who live with a Rare Condition & on this day we help to spread awareness, support & also simply be seen EQUAL #rarebutequal As im getting older, I'm getting more understanding of whats happening around me & frustrated, NOT with my condition (you can't change that & IM PROUD!) but with the healthcare for people living with a disability, rare condition, chronic illness, the list goes on. I, myself am not bothered by my disability AT ALL but I am bothered by an added NEW condition which makes my life a living hell if not treated. Though, for many its easy to be treated for it BUT with my circumstances of having my disability - its not! The health care system, rules and politics gets in the way BUT in reality its SO SIMPLE! They would rather put the "number" first than the actual physical body. The amount of times I/we leave the drs room - broken, questioning our worth & feeling invalidated is endless. Finding a Dr who actually listens is harder than winning the lottery! To be seen EQUAL is rare. I've had one Dr last year tell me "well, your life span is short, for your condition, so you have to live through it unfortunately" This is TRUE STORY! The audacity right!? That breaks you! Lucky im a strong happy character mentally. Others, you know what they might do. PS to those who said 12yrs old.. well I'm 32 now 💪 We ALL should be treated fair. We need better care, diagnosis, & treatments without hesitation! To those going through it.. Put your foot down! Speak up! Don't be shy! Take action! DONT STOP! You know your body. You know what's right. For me, it took time, sweat, tears... I got there. Had treatment done. Felt amazing but unfortunately now need to do it again as it wore off. You would think it would be easy from now? NO! Just because we are "different", the processes we have to go through is never ending. To the point you have surgeons or anaesthetists declining your procedure (you will be shocked to know why!) which is life threatening if not treated! Now thats crazy stupid right!?! We were born to live a happy life. Not a painful one. 🥰💪💕 #showyourstripes

48

23

We can’t wait to make more memories in 2025 🌟 We have a lot of exciting things in store for 2025 & can’t wait to share them with you 🏕️🫂

Thank you to @swfaustralia for creating a space for rest, connection and hope 🧡❤️💜💚 #raredisease #stevewaughfoundation

11

1

That’s a wrap for 2024! 🧡❤️💜💚

In November, we held our final SNUG retreat for the year with our lovely TPN families! The families travelled from near and far to make the most of this unique opportunity to connect with others that understand life with TPN.🫂💖

Thank you to @SWFaustralia for giving these kind, brave, resilient families the chance to build lifelong friendships and to experience a much-needed, fun-filled weekend away.🌟🏕️

“I never dreamt it would be possible to meet as many families going through a similar journey as my own. I have never met as many brave people in my life. To see so many wonderful children like my own so happy and content around each other was just incredible.”
- SNUG Mum😊

#stevewaughfoundation #tpn #raredisease #childhoodillness #rarecondition #rareillnessawareness

12

0

⭐“This was made possible by you. Thank you.” ⭐

Grant Recipient Liam loves supercars. Over the weekend, Liam was able to attend the Bathurst 1000 thanks to the wheelchair the Steve Waugh Foundation provided.

The added bonus… our long-term, generous and passionate supporter, Betty Klimenko of @erebusmsport, took out top spot! 🏆

Betty and Liam have known each other for years, with Betty going out of her way to spend time with Liam and welcome him into her team. The two first meet at a supercar event when Liam was just a toddler and have had a special connection ever since.
.
.
.
#stevewaughfoundation #grants #somewheretoturn #bathurst1000 #rarediseases #supporters

40

0

🌟Throwback Thursday!! 🌟

Since 2009, the SNUG program has been proudly funded by the Steve Waugh Foundation. The Steve Waugh Foundation is dedicated to being ‘somewhere to turn’ for children and young adults (0-25yrs) living with the rarest conditions.

We couldn't thank the Steve Waugh Foundation enough for their continued support, without their generous support, the SNUG program would not be where it is today 🧡❤️💜💚

p.s @swfaustralia when are you coming back to attend a SNUG retreat- we would love to see you! 😊

#stevewaughfoundation #newcastleaustralia #newcastlensw #universityofnewcastle #raredisease #rareillness #rareillnessawareness #childhoodillness #rarediseaseawareness

4

1

We had a chat to Cadence at her last SNUG retreat about her time at SNUG over the years, swipe across to see what she said about her time at SNUG from 4– 18 years old 🥰🫂💓

Cadence now 18, told us after her time at SNUG she wants to help volunteer with other young kids that have Williams syndrome. SNUG has inspired her to “want to teach them how to do stuff in life when they get a bit older and help out with other things, like doing like creative stuff, doing art projects, music, school stuff- I want to be able to help.”

#rarediseaseawareness #stevewaughfoundation #newcastleaustralia #newcastlensw #universityofnewcastle #raredisease #rareillness #rareillnessawareness #childhoodillness #williamssyndrome #williamssyndromeawareness

13

2

This March we held our first retreat for 2024, starting our year strong with such amazing and resilient families!! 🧡❤️💜💚

This retreat was held for families of a child with Sanfilippo syndrome, and we are blown away with the love, support and connections formed during this retreat! Such a strong village 🏠🫂💓

Thank you to @swfaustralia for giving 7 wonderful families an opportunity to connect during challenging times and a special thank you to Kerren
@sanfilippochildrensfoundation for your support in planning and helping make this retreat all that it was for all of our Sanfilippo warriors, mums, dads and siblings 💜

#sanfilippo #sanfilipposyndrome #raredisease #rarediseaseawareness #stevewaughfoundation #newcastleaustralia #newcastlensw #universityofnewcastle #raredisease #rareillness #rareillnessawareness #childhoodillness

18

1

Rare is many, Rare is hard, Rare is strong, Rare has challenges, Rare is kind, Rare can fight, Rare is proud, Rare is magic, Rare is smart, Rare can hurt but Rare is PROUD!! HAPPY RARE DISEASE DAY !! 🥰💕💋💪 #awareness
.
.
.
.
#rarediseaseday #2024 #rare #riseup #special #itme ##yassqueen #fight #magic #hardships #strongwoman #strong #strengthofcharacter #liveforthechallenge #proud #raredisease #smart #happy #smiles #beyou #liveyourbestlife #beautiful #stevewaughfoundation #rarediseaseawareness #light

48

8

“There is freedom waiting for you in the breezes of the sky … and you ask .. but what if I fall?

Oh my darling … what if you fly” 💚

Happy birthday Will. Always our incredible inspiration.

79

10