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HeartWorks

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❤️ Sometimes changing the future means changing your own path. Dr. Nelson’s journey reminds us that sometimes the biggest breakthroughs begin when someone is willing to question what has always been done and imagine something more. 🎙️ Listen to our latest episode of Candid Hearts Conversations with Dr. Tim Nelson on Spotify and Apple Podcasts. Hear his story, learn about the vision behind HeartWorks, and discover why continuing to push for more matters to our entire CHD community. Our stories deserve to be heard. Our futures deserve investment. And the next chapter of congenital heart disease care is worth fighting for. ❤️ #CandidHeartsConversations #HeartWorks #CHDResearch #HLHS #FontanLife
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The story’s that make the most impact are the ones that are real. Where you are doing normal things, pushing through on the hard days with half a heart. Dr. Tim Nelson talks about what stories push him through to keep going. New episode out tomorrow!! #chd #chdwarrior #chdawareness #chdsurvivor
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❤️ ANOTHER EXCITING CAMP AIM SHOUT-OUT! ❤️ A huge THANK YOU to HeartWork for sponsoring Camp AIM! 🏕️💕 Your love, generosity, and continued support of the CHD community are incredible! It means so much to see organizations like HeartWorks recognizing the importance of supporting adults living with congenital heart disease. Life with CHD is a lifelong journey, and having a community that continues to show up for adults along the way makes such a difference. Thank you for believing in Camp AIM and helping us create a space where adults with CHD can find their people, build friendships, and experience the power of meaningful connection. ❤️ We are so grateful to have you as part of our journey as we look forward to year two! 🥰 Thank you, HeartWorks, for helping make Camp AIM possible! ❤️⛺️ @webuildhearts #campaim #chd #adultchd #heartcamp
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Become a story teller for CHD! Cannot wait for this episode to come out, it’s so powerful! Episode out Monday October 12th! #chd #chdwarrior #chdawareness #chdaware #hlhs
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We owe so much to the pioneers who came before us but we also have to ask: What comes next? In our conversation with Dr. Tim Nelson on Candid Hearts Conversations, we reflected on the incredible contributions of Dr. Norwood and Dr. Fontan. Their work changed the lives of countless children born with complex congenital heart defects, including those of us living with HLHS and Fontan circulation today. We are forever grateful for the doors they opened and the lives they helped save. But as adults living with single-ventricle heart disease, we can’t help but ask: Why has surgical treatment changed so little over the decades? What will it take to move beyond the procedures that have defined our lives? Dr. Nelson shared his perspective on how progress has often been incrementaland why that reality played a role in his own career path and his decision to pursue new ways to improve outcomes for congenital heart patients. Episode out Monday, October 12th! #chd #congenitalheartdisease #chdwarrior #chdawareness #chdadult
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What are your thoughts on how medicine has changed or not changed? Episode with Dr. Tim Nelson out October 12th #chd #chdwarrior #chdawareness #chdlife
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First @barrys Red Room workout in the books. So much more content coming from this incredible night. If you had told my parents, or the girl whose exercise capacity was defined by her CHD growing up, that I could do this....they never would have believed you. My work family and I moved together to raise awareness (and 3k!) for Congenital Heart Disease and I've never felt so empowered. If I've learned anything in my fitness journey, it's that consistency beats motivation every single time. And to never forget your WHY. And then...just do the damn thing. No matter what it looks like! My biggest whys: this single ventricle heart of mine, longevity, and my mental health. What's your why? Ready to crush All out 30 2.0 with @daniellepascente and then Move with Heart: 100 days to move, heal and connect our hearts. We are so excited for this one, visit project1in100.org to sign up for FREE! #chd #chdawareness #movewithheart #barrysbootcamp #singleventricle
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An estimated 2.4 to 3 million people in the U.S. are living with a congenital heart defect. And thanks to medical advances, adults now outnumber children. That’s real progress, and it’s why we’re so hopeful about what’s ahead. Behind every number is a family, and we’re proud to be part of this community here in Montana. Want to help move heart research forward? Every dollar you give to our HeartWorks campaign is matched, up to $50,000. Donate through the link in our bio. ❤️ #montanabravehearts #congenitalheartdefect #heartfamily #bravehearts
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HeartWorks takes a small sample of your skin, spends nine months in the lab feeding it, coaching it, and occasionally yelling at it, and ends up with your own beating heart muscle cells. They now have FDA clearance to inject those cells back into adults with single ventricle CHD, which has never been done before. Tim Nelson joined us to explain how it works, why the first nine patients will be the ones with the fewest options left, and what the vision actually is, which is rebuilding hearts from day one instead of waiting for heart failure. #chd #chdwarrior #chdawareness #heartworks
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HeartWorks is a CHD research and innovation organization focused on changing the future for people born with congenital heart defects. Their goal goes beyond helping patients manage CHD, they’re working toward treatments that could actually strengthen, repair, or regenerate heart muscle and ultimately move toward a cure. A huge part of their work involves regenerative medicine and patient-specific cells. They’re researching ways to take a person’s own cells, turn them into heart-related cells, and potentially use those cells to improve heart function. They’re also developing technologies to improve circulation and expand options for people who might otherwise face heart failure or transplant. Episode out October 12th! #chd #chdawareness #heartworks #chdaware
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Dr. Tim Nelson is a physician-scientist and leader in regenerative medicine who has dedicated his career to transforming the future of congenital heart disease (CHD) care. As CEO and Co-Founder of HeartWorks, he leads a multidisciplinary team advancing innovative therapies and technologies designed to strengthen and rebuild hearts. His vision is to accelerate the path from scientific discovery to clinical application, bringing new hope to the 1 in 100 born with CHD. New podcast episode drops October 12th! You do not want to miss this one! #chd #chdawareness #chdwarrior #chdadult #hlhs
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HeartWorks introduced us to the phrase - a “team of teams.” Their purpose is to develop a cure for congenital heart disease, and they build hearts to do it. Not only is their work remarkable, but their support for other CHD organizations like ours is unmatched. I knew they would become a special friend of ours after my first call with their CEO, Dr. Tim Nelson, more than a year ago. They have backed us ever since. This week they sent their brand-new, state-of-the-art food truck from Wisconsin to Maryland just to support our tournament, and their team volunteered all day. HeartWorks is changing the future of CHD. We are honored to stand beside them. Thank you, Tim, Matt, Jill, Calla, and the entire HeartWorks team. #StrongerHeartsFoundation #CHD #WeBuildHearts
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