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HeartWorks is a 501(c)(3) non-profit foundation that builds hearts and creates positive outcomes for people born with CHD.
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HeartWorks is on a mission to change outcomes of congenital heart defects by advancing regenerative cardiac therapies. In this new docuseries, we share the powerful stories of Frankie, Kelly, and families like theirs that are affected by severe forms of CHD like Hypoplastic Left Heart Syndrome (HLHS).

Watch as HeartWorks builds stronger hearts and deeper connections, and join the journey toward a future where no family lives with a broken heart.

Learn more at webuildhearts.org ❤️

#congenitalheartdefect #chdawareness #singleventricle #hlhs #chd  #webuildhearts #regenerativemedicine #heartresearch #1in100 #clinicaltrials #heartworks #congenitalheartdisease by @webuildhearts
8
a year ago
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Research Opportunity: The Co-op at HeartWorks 

Learn more: Link in bio! 

#HeartHealth #CHDAwareness #MedicalResearch #HealthAwareness #CureCHD #CureCHD #HopeForHearts #CHDStrong #HeartWarrior #FightCHD #1in100 #SupportCHDResearch by @webuildhearts
1
a year ago
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Beat on repeat. 

HeartWorks develops therapies that use a person’s cells to enhance their existing heart muscle or grow 
new beating heart muscle.

#chd #1in100 #congenitalheartdefect #heartresearch #clinicaltrials #heartworks #acureisintheworks #webuildhearts by @webuildhearts
2
4 years ago
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Congratulations to Edward and Denise Jones! Thanks to them, the newest HeartWorks robot will be named Bella, in honor of their granddaughter, who was born with Hypoplastic Left Heart Syndrome (HLHS).
Her name will be a permanent part of the innovation and research helping drive new therapies and brighter futures for children born with congenital heart disease.
Keep an eye out to learn more about Ed and Denise and their special connection to HeartWorks! by @webuildhearts
2
3 days ago
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Three months left in 2026. We plan to make them count.

We set big goals for this year, and we’re not done yet. Over the next three months, our team will keep pushing to turn the momentum we’ve built into meaningful progress for the 1 in 100.

At the end of the year, we’ll share where we landed - what we accomplished, where we fell short and what comes next.

Transparency and dedication are two things you can always expect from HeartWorks.

For now, there’s work to do. Let’s finish 2026 strong. 💪♥️ by @webuildhearts
0
10 days ago
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HeartWorks introduced us to the phrase - a “team of teams.” Their purpose is to develop a cure for congenital heart disease, and they build hearts to do it. Not only is their work remarkable, but their support for other CHD organizations like ours is unmatched. 

I knew they would become a special friend of ours after my first call with their CEO, Dr. Tim Nelson, more than a year ago. They have backed us ever since. This week they sent their brand-new, state-of-the-art food truck from Wisconsin to Maryland just to support our tournament, and their team volunteered all day.

HeartWorks is changing the future of CHD. We are honored to stand beside them. Thank you, Tim, Matt, Jill, Calla, and the entire HeartWorks team.

#StrongerHeartsFoundation #CHD #WeBuildHearts by @webuildhearts
1
12 days ago
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💙 Drop a heart in the comments if you love someone with a heart defect.

Today is World Heart Day, and we’re using it to shine a light on the 1 in 100.

Congenital heart disease is the most common birth defect, affecting approximately 1 in every 100 babies born. For many, it’s a lifelong journey and it’s the reason HeartWorks exists.

We’re building a platform focused entirely on CHD, bringing together research, manufacturing, technology and the heart community to develop new possibilities for people born with heart defects.

So today, let’s see just how big this community is. 

#WorldHeartDay #HeartWorks #CHD #1in100 CongenitalHeartDisease #WeBuildHearts by @webuildhearts
42
17 days ago
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Today is World Heart Day. For the CHD community, heart awareness has a name, a face and a story.

We created this reel for YOU to share. Save the reel, add your heart warrior’s name to the blank space using the text tool, then share it to your story or feed. Tag @webuildhearts so we can see who you’re celebrating! 

When you share, ask your friends and family to help support HeartWorks by sharing, donating or visiting our website to learn more about the work happening for the 1 in 100.

Let’s fill some feeds with the names behind our mission this World Heart Day.

Thank you for helping us spread CHD awareness!

#WorldHeartDay #HeartWorks #CHD #CHDAwareness #1in100 HeartWarrior by @webuildhearts
1
17 days ago
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We needed a few days to recover from Friday… but I still don’t think Teddy and I have fully wrapped our heads around it. 

Year TWO of Lenni’s Par-Tee for CHD and somehow you guys showed up even bigger for our girl.

I don’t know if I’ll ever be able to explain what it feels like to look around and see that many people there because they love Lenni, love our family, or simply care enough about kids like her to show up. Whether you golfed, sponsored, donated, volunteered, bought raffle tickets, helped us set up or supported us from afar, THANK YOU. 🩷

We’re still adding up the final numbers, but we know we’ll be able to donate over $40,000 to HeartWorks. 🤯 And THAT makes all of the craziness leading up to Friday worth it.

HeartWorks @webuildhearts is doing some freaking incredible things in CHD research, and knowing the money we raised together is going toward work that WILL directly change the future for kids like Lenni is something I don’t even have the words for. Please go follow them and see what they’re working on because you all helped make a little piece of it possible. 🫀

We have so many people to thank and SO much more to share, but for now, just know how incredibly grateful we are.

Our girl has one hell of a village 🩷

And apparently we’re crazy enough to do it again…

⛳️ SAVE THE DATE ⛳️
3rd Annual Lenni’s Par-Tee for CHD 
September 24th, 2027 🫀

And once we get the full gallery back from the amazing @sportraitsbystefanieod , you KNOW we’ll be sharing them. She definitely captured some of the best moments 📸 by @webuildhearts
4
19 days ago
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Keeping it cool is part of the process. ❄️🧬

What you see here is our team working with cryopreserved cells stored at nearly -320°F (-196°C).

At key points in the manufacturing process, cells are frozen and stored at ultra-low temperatures. This essentially puts cellular activity on pause, helping preserve the cells and maintain their quality and viability until they’re needed for the next step.

From growing and feeding cells to freezing, storing and eventually thawing them, every step is carefully controlled.

Just another part of the rhythm of building hearts. 

WEBUILDHEARTS.ORG by @webuildhearts
1
24 days ago
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For the 1 in 100, we give 100%

Behind the science happening in our labs is a very real reason for doing it: people born with congenital heart disease who deserve more options for their future.

WEBUILDHEARTS.ORG by @webuildhearts
0
a month ago
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Today is the LAST DAY to place a bid for the rights to name our new 6-axis robot through our silent auction, which closes at  6:00PM CT tonight, Sept 15. The winning bid will choose the robot’s name, which will be permanently displayed in our lab and used in our social media content. 

All proceeds will help advance CHD research, innovation, and care.

Place your bid using the link in our bio! by @webuildhearts
1
a month ago
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