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🌺Finding Bliss through chronic illness
🌊Joy in the midst of MECFS, fibromyalgia & endometriosis (FUNCAP 1.7)
šŸ’–A space of Love & advocacy
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The 3rd December is ā€˜International Day of Persons with Disabilities’. I want to highlight those of us living with ME/CFS and Long Covid, especially those who suffer severely and don’t have the capacity to share their voice.

MEAction launched the #MillionsMissing movement to demand equality from our governments for M.E. in research, clinical care and support. The #MillionsMilling represents the millions of people missing from their lives due to ME, missing their careers, time with family and friends and missing simple pleasures like sitting in the sun or taking a walk. The pandemic has been devastatingĀ for our community, quadrupling the number of people with ME as the majority of people develop ME following an infectious trigger such as a virus.

If you can, please take action using the links below:

https://www.meaction.net/millionsmissing25
https://storyofmillionsmissing.org/

Inspired by a post from @lucyschroniclife 

#mecfs #longcovid #actionforme by @therachaelferrera
211
10 months ago
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This experience has taught me to cherish every moment and to be grateful for every function of my body. 

Even though I’m currently functioning at about 35 percent…

Even though some days I need help just to get out of bed…

There is so much my body is still doing well. 

There is so much to be grateful for.
#chronicillness #mecfs #spoonie #fibromyalgia #invisibleillness #gratitude #sepsissurvivor by @therachaelferrera
33
2 years ago
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Just call me SimonešŸ…šŸ¤øšŸ¾ā€ā™€ļø

#chronicillness #invisibleillness #olympics #simonebiles #mecfs #pots #spoonie by @therachaelferrera
69
2 years ago
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Celebrating my 39th birthday Sept 25th - Oct 25th …a full month!🄳

A bucket list opportunity has opened itself up to me…partially…and I would deeply appreciate your support in helping me get to actually experience it šŸ¤žšŸ¾

This experience can happen from my bed and is set up in a way that would be fully accessible to me even with my current capacity.

I have been gifted a PARTIAL scholarship to a mentorship with my favorite spiritual teacher and thought leader @michaelbbeckwith šŸ˜†

The only thing is, I need to come up with the other part, and I need your help doing that! 

I am not exaggerating when I say that of everything I have tried over these last few years, his work and his teachings have brought the deepest healing to me. 

I truly believe that without his work and teachings, it’s possible that I would no longer be here.

This work helped me pull through sepsis.

This work has helped me hold on in the darkest times of MECFS/debilitating chronic illness over these last nearly 4 years.

This work has transformed me in ways I may never have the words for.

And I very much believe that this mentorship will open up so much more healing for me — spiritually, emotionally, and even physically.

I feel it in my bones.

Can you help me get there??

Any amount that you can give is deeply appreciated. Truly!

And if you are unable to give financially, please engage, comment, share and do all the things. It makes a world of difference! 

Donate & celebrate with the link in my biošŸ’–

Thank yoooou!!! 

#mecfs #myalgicencephalomyelitis #birthdaygift #chronicillness #bucketlist by @therachaelferrera
6
14 hours ago
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I’m so looking forward to our next MECFS co-rest gathering, co-hosted with @connect_with_mecfs, and can feel the soothing energy already! 

If any part of you wants to come, I invite you to start seeing yourself there and imagining how it will feel to be in community with our beautiful community.

I know how this illness works. I’ve been living with it for years now. 

So I know there are so many things we want to do but don’t get to do. It happens to me too, and it can be devastating.

I also know that allowing yourself to imagine yourself at this gathering is a win-win situation regardless of what happens next! 

Imagine yourself THERE on Monday. In the room. Connected. Breathing deeply. Resting. Together. Feel the warmth and the love in the space. Feel the light of the community. FEEL it in your heart and in your body.

Do you feel it?

Here’s the thing, if you allow yourself to really experience this right now, you get to receive benefits from this event right now, regardless of what happens next!

And SOMETIMES when we allow ourselves to feel the energy of living the thing we desire before it happens, it activates a little magic in the Universe to make it so! Then you can receive benefits now AND later.

Oh my love, can’t wait to see you in the room.

Can you see yourself there? Let me know in the comments✨

Link to join is in both of our bios šŸ’™

#mecfs #myalgicencephalomyelitis #chronicfatiguesyndrome #longcovid #millionsmissing by @therachaelferrera
0
2 days ago
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In the midst of MECFS, it can be really really hard to feel the good of life anywhere.

I find that sometimes I have to CREATE it in a way. 

This was my way one morning a couple weeks ago, and I’m finally getting to share it with you.

In the before times, when I was working as a spiritual teacher, I would always say that joy is always available regardless of circumstances. HA! 

It seems the Universe decided to test me on that one šŸ˜…

Turns out, it is! It is NOT always easy to find or connect with. 

Lemme tell ya, there have been many times where I see not a glimmer of joy in sight and everything feels so dark that it feels like I could not possibly go on.

But the joy is always there. The good is always there. The light is always there. Somewhere.

Even when I can’t look at it in the moment, it’s here. It’s available.

And I find that the moment I am able to turn my attention even to the POSSIBILITY of it, it shows up. 

Sometimes in the teeny tiniest way. 

And then I hold on to that tiny bit of light for dear life until it eventually expands into more light, more good, more joy.

And then sometimes it feels like it all disappears and round and round we go.

For anyone who isn’t connected to light or good or joy or hope right now, there’s zero judgment on that. There isn’t a right or wrong way to move through circumstances like this. 

We’re all doing the best we can and focusing on what most needs our attention and sometimes that’s pure survival.

This is something that helps me get through some dark days, and I wanted to share in case it helps someone else too.

What helps you feel and find the light in the midst of MECFS chaos? 

I really do wanna know, and maybe we can support each other in the comments! šŸ’™

(Not me getting ready to post this and noticing the captions at the end of the song say ā€œI got MEā€ šŸ˜‚šŸ« šŸ’™šŸ˜µā€šŸ’«šŸ™ƒ)

#mecfs #myalgicencephalomyelitis #chronicfatiguesyndrome #spoonie #chronicillness by @therachaelferrera
12
a month ago
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POC friends with MECFS, how do you feel these 2 things impact each other in your experience? 

What do you wish other people knew or understood about navigating the world with both of these things as part of your experience? 

Where do you personally feel the biggest impact? Is it with the doctors? Your family and/or immediate community? Somewhere else? 

Tell me your thoughts please! 

I love you all to the ends of the earth!

I know it can be beyond challenging moving through life with MECFS OR as a POC…and I know when they’re both in the mix together it can be….a lot! 

Just please know you are not in this experience alone. There are others here who understand and are here for you. I’m one of them! Seriously sending you so much love šŸ’™

#mecfs #myalgicencephalomyelitis #chronicfatiguesyndrome #millionsmissing #longcovid by @therachaelferrera
37
2 months ago
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MECFS life is so bizarre.

I’m sooo grateful for the calling and the opportunity to lead Soul Prayer this week.

AND I want to be transparent about what it looks like behind the scenes.

It takes hours upon hours upon hours of rest in the dark, not speaking to anyone, fully turning off my brain, and moving through the experience of symptoms in order for me to show up for this 30 mins a day.

So far so good, and I trust that I’ll be able to finish out the next couple days.

But even with radical rest, extra support (and extra quiet) from my PCA (personal care assistant), I’m feeling the impact.

I’m not doing this at the expense of my body, but there is a cost as there is with everything when you’re experiencing MECFS.

For me, for these few days, the cost is worth it in order to follow the deep deep calling of my soul to offer this experience to my community and to feel and share the Truth of the Light inside me for a few minutes each day.

I want to be clear that this is NOT me pushing beyond my limits. And this is NOT me will powering my way through anything. I do NOT recommend that with ME…ever.

This is actually me surrendering to a calling with an immense amount of trust and knowing that I will be guided to all the actions I need to take and provided with all the support and energy I need in the moment and beyond in order to answer the calling. 

It’s like a dance with Divinity in the midst of all the seeming chaos of MECFS. 

There is deep listening involved - to my body and to the Divine. And if at any point I am shown that I need to change the plan, I will do exactly that.

For now though, I’m being shown that it’s time for bed and that we’ll be back same time tomorrow! 

I’m beyond grateful to be doing it, and am looking forward to the next 2 days of leading Soul Prayer…even if it means more radical rest in the darkšŸ’–

Info is in my bio if you’d like to join me for our last couple days! 

#mecfs #myalgicencephalomyelitis #chronicfatiguesyndrome #chronicillness #spoonie by @therachaelferrera
3
2 months ago
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I am genuinely blown away by what is happening in this space in just 30 minutes each morning! 

It’s been such a joy leading this so far and having people from so many different phases of my life and from so many different walks of life coming together in a sacred space of healing 🄹

We’ve had a good amount of people from the MECFS community there too participating in whatever ways they are able even if that’s just laying, resting, and soaking it all in šŸ’™

So just know, if you feel called to come, whatever level of capacity you have is perfect and is enough. 

I find that I am being Sourced by the Infinite Source to have the capacity to show up for this each morning despite navigating MECFS myself. 

Some true miracles have been unfolding since the moment I internally said ā€œyesā€ to this to allow it to come to fruition and make it possible for me to do it.

We’ll be doing this every weekday! 

Join us in the magical space of healing, love, and Divine Truth! 

Link to sign up is in my biošŸ’–

#mecfs #myalgicencephalomyelitis #chronicillness #prayer #divinelove by @therachaelferrera
0
2 months ago
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Yes, I am still navigating MECFS.

No, I am not in a place to be back to work anytime soon. (I used to be an energy healer & spiritual teacher)

Yes, I still have and deeply need a support person here 5 days a week in addition to my mom’s care and support.

And no, I do not think I will be doing this at the expense of myself.

So how is it that I am offering this in the midst of MECFS, Sjogrens, and a bunch of other chronic illness nonsense that has me in bed 90% of the time? 

Y’all I don’t know HOW! 

I was in meditation recently, and I was very clearly (and loudly!) guided to offer this. 

I never ignore a Divine calling, even when I can’t see the how of it all.

So this coming week, I am exercising an immense amount of faith, trusting that I will be able to lead this sacred space each morning and that it will not be at the expense of my body.

I believe I will be sourced by the Source to give me the physical and mental capacity to show up for this for 30 mins each morning and for my baseline to remain the same or increase!

Join me in this sacred space of trust, healing, and Divine Truth.

This is open to any and all who are looking to connect more deeply with themselves, each other, or Higher Power. 

Drop an emoji to wish me luck! 

Link in bio to sign up for Soul Prayer (it’s free!)šŸ’–

#energyhealing #prayer #mecfs #chronicillness #spoonie by @therachaelferrera
5
2 months ago
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If you didn’t know me in the before times, I was an energy healer and spiritual teacher šŸ§˜šŸ¾ā€ā™€ļøāœØ

I recently felt a strong calling to offer this, and I always follow callings of this nature no matter how crazy or impossible they may seem.

I have extra support in place leading up to and during next week to allow me to show up for 30 minutes each weekday morning next week despite navigating 6 chronic illnesses that have me living 90% bedbound. 

I am deeply trusting that it will work out, and I would love love love for you to join me!

This is transdenomenational, meaning it’s not connected to any specific religious belief or structure.

Whether you believe in God, the Universe, Love, a mysterious higher power, or nothing at all, you are absolutely welcome to join.

If you have a specific request around something you’d like clarity, healing, release, peace etc. around, you can bring that request with you.

Or you can simply be present in the high vibe and receive.

Join for one day, all days, or anything in between! 

If some part of this resonates with you, or if you have any questions, let me know in the comments! 

Link in bio to sign up to joinšŸ’–

#prayer #chronicillness #mecfs #spirituality #spoonie by @therachaelferrera
2
2 months ago
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This ME thing can be isolating. We don’t want you to feel alone.

We also don’t want you to have to overexert in order to feel connected and engaged with the world.

This is why we created the MECFS co-rest gathering.

It’s a space to breathe, connect, and rest together.

Sounds simple, but it’s amazing how much coming together to rest in community feels like a healing balm to our dear sweet hearts that are longing for connection.

Come for as long as you are able. Leave when you need to. 

Gently engage with us in the chat at the beginning and the end. 

OR just have someone sign you in, turn the volume to the lowest setting, and lay with your sleep mask on til we end the meeting.

Come as you are friends. We love you so much!

@connect_with_mecfs and I can’t wait to rest with you tomorrow.

Link to join is in both our bios šŸ’™
Passcode: rest

#mecfs #myalgicencephalomyelitis #chronicfatiguesyndrome #millionsmissing #chronicillness by @therachaelferrera
13
2 months ago
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