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Alopecia World

@alopeciaworld

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AlopeciaWorld.com - Life-changing support & info on living with hair loss.
#alopecia #alopeciaworld #alopeciaawareness
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Owner: @cherylccj

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Has Medicare Part D denied coverage for your alopecia areata medication?

NAAF wants to hear from people who have experienced denials, delays, or restrictions.

We’ve shared the details on Alopecia World:

LINK IN BIO:

https://alopeciaworld.com/profiles/blogs/has-medicare-part-d-denied-your-alopecia-areata-medication by @alopeciaworld

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2 months ago

Inspired by Cheryl Carvery-Jones, founder of AlopeciaWorld.com, Whole in the Mirror is now on Amazon! This heartfelt story follows Talia Rivers as she discovers strength, beauty, and love after losing her hair to alopecia areata.

For anyone who’s ever wondered if they’re enough (spoiler: you are 💖).
👉 Get your copy today and share it with someone ready to embrace their own journey!

Follow link in Bio:
https://a.co/d/6emBEMY by @alopeciaworld

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2 years ago

Do you ever struggle with feeling unattractive due to alopecia? How has it affected your self-image and how do you deal with those emotions?

Living with alopecia, a condition characterized by hair loss, can challenge our self-esteem and self-image in profound ways. It's okay to acknowledge the feelings of vulnerability and insecurity that come with it. In this blog, we will address the complex issue of confronting the fear of feeling ugly when dealing with alopecia, and why it's essential to have honest conversations about these emotions.

Please share, someone may need to hear this.

Link in Bio

www.AlopeciaWorld.com
@alopeciaworld

#alopecia
#overcominginsecurities
#self-love
#self-acceptance by @alopeciaworld

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3 years ago

by @alopeciaworld

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14 days ago

Final reminder for U.S. adults (ages 18–65) with Alopecia Areata.

A paid online research study is seeking participants. Eligible participants who complete the study will receive a $120 e-gift card.

Full details and sign-up information in bio

Feel free to share! by @alopeciaworld

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4 months ago

Paid alopecia areata research opportunity ($120)

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Hi everyone,

We wanted to share an optional research opportunity that may be of interest to some in our community.

A third-party research team is currently inviting U.S. adults with alopecia areata to participate in a short online video survey (about one hour) and is offering $120 compensation.

If you’d like to learn more or decide if it’s a fit for you:

Link in the bio

Please share Share, if you know anyone who may be interested. by @alopeciaworld

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5 months ago

A lot of people say things are getting better for those living with alopecia.

More awareness.
More research.
More representation.

But if you actually live with it…

have we really arrived?

We wrote about this on the blog today.

Link in bio.

#alopecia
#alopeciaareata
#alopeciaawareness
#hairloss
#alopeciacommunity by @alopeciaworld

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7 months ago

Hi everyone,

It’s Cheryl from Alopecia World. I’ve been thinking a lot about this community — how long it’s been here, the stories shared over the years, and the connections that still matter even when things get quieter on the surface.

I posted a short check-in on the site today, and I’d love for you to be part of it.

Nothing complicated. Just one honest question:

What’s one thing you wish the alopecia community talked about more openly?

There’s no pressure to go deep if you’re not in that headspace. Some people may write a sentence, others a paragraph — either is fine. It’s simply a space to reconnect, reflect, and be real with people who understand.

If you feel up to it, you can join the conversation on Alopecia World.

I’m reading each response, and I appreciate you being part of this community in whatever way feels right for you.

Warmly,

Cheryl by @alopeciaworld

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a year ago

Wig lovers—help needed!

One of our members has been wearing human hair wigs for over 10 years and is seeking recommendations.

Got a favorite wig that fits well and stays put? Share your tips and experiences at the link in bio by @alopeciaworld

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a year ago

Many of us have spent years hiding, afraid of what others would think. But freedom isn’t about wigs or being bald—it’s about owning our story.

Read the latest blog on overcoming fear and taking back control in the blog section of AlopeciaWorld.com:

Sign in to AlopeciaWorld.com and share your thoughts! by @alopeciaworld

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2 years ago

Do you have any upcoming events related to alopecia? We’d love to feature them on our Events Section at Alopecia World. Whether it’s a meetup, awareness campaign, or educational session, let’s spread the word and connect our community!

📩 Add your event to Alopecia World today and help us continue building awareness and support.

https://alopeciaworld.com/events by @alopeciaworld

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2 years ago

by @alopeciaworld

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2 years ago