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MondayNightIBD

@mondaynightibd

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Created by @dcharabaty Join us every Monday on twitter for #IBD #MedEd 🆓#CME #Back2Basics
#IBDPoll & convo
#PatientExperience

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Surprise, surprise! SAIA has not 1 but 2 events at @ddwmeeting in Chicago this weekend! 🙌

On behalf of the @amergastroassn (AGA), South Asian IBD Alliance (SAIA), @colorofcci (COCCI), and @medscape, we invite you all to join us for an innovative, unique event, Unconscious Bias: Now You See It, Maybe You Don’t? A Blindspot Revealed, presented at the AGA Central booth on May 7th at 10:30 am and again at 2:30 pm CST during Digestive Disease Week® (DDW) 2023.

A person living with IBD and a clinician will discuss real-life case scenarios experienced by Black and South Asian people during the diagnosis and management of their IBD. Register today in the #LinkinBio to learn about unconscious bias in #IBD!

#SouthAsianIBDAlliance #SAIA #SouthAsianIBD #SouthAsian #BlackHealth #COCCI #AGA #Medscape #ChronicIllness #Crohns #CrohnsDisease #ulcerativecolitis #jpouch #ostomy #fistula #MinorityHealth #MedEd #MedscapeLive #DDW2023

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Healthcare for those with IBD in the LGBTQIA+ community looks a bit different.🏥

IBD often affects young adults, many of whom are just beginning to become comfortable in their sexuality and gender identity. This can be especially hard for LGBTQIA+ folks, who have already had to work through stigma and discrimination, and then have the additional burden of a new diagnosis of IBD. The LGBTQIA+ community is a big, diverse group of people and each person is unique.🏳️‍🌈

Click the link in my bio to learn more about:
🌈An IBD clinic launching this Fall specifically geared for LGBTQIA+ patients
🌈Living with the stigma of both IBD & LGBTQIA+
🌈The impact of IBD on sexual function
🌈Overcoming the fear of judgement and finding a care team you can openly communicate with
🌈Tips for seeking out LGBTQIA+ affirming healthcare providers
🌈Additional IBD screenings for the LGBTQIA+ community
🌈Juggling love and parenthood...and much more.

Special thanks to Dr. Justin Field, @bssl, and @ccspringhetti for their transparency, honesty, and incredible insight that made this story possible. 💜

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🌟Attending Digestive Disease Week (DDW) as an IBD Warrior! 🌟 DAY 1️⃣⁣
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I’m thrilled to share my unforgettable experience attending @ddwmeeting Digestive Disease Week (DDW) as an IBD (Inflammatory Bowel Disease) patient. This event brought together the brightest minds, cutting-edge research, and a supportive community all focused on gastrointestinal health. 🌍⁣
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Thank you so much @amergastroassn for the unforgettable patient experience and for the opportunity to be apart of the #AGAIBDInfluencer program! ⁣
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As someone living with IBD, this was an incredible opportunity to stay up-to-date with the latest breakthroughs and connect with experts in the field. 🧬🦠🔬⁣
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🌐 Beyond the educational aspect, DDW brought together community! I had the chance to meet fellow IBD warriors who understand the daily challenges we face. ⁣
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The experience was unforgettable, from attending the #AGAGastroSquad Ambassador meet-up to the incredible Poster Hall sessions (too many to count)! 🙌🏾 📊 ⁣
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Attending the @medscape Mix & Mingle event along with @colorofcci discussing what’s new in healthcare and ways to better impact IBD patients! ⁣
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💡I listened in to Dr. @ChristianKarime as he had a discussion around the importance of vaccinations for IBD patients. Studies show that 75% of patients with IBD achieved immunity to HBV after 2 doses of Heplisav-B vaccine. ⁣
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💡Dr. @ariel_jordan22 study highlighted that only 22.5% of IBD patients underwent screening for anxiety or depression during hospitalization, 77.5% noted no discussion of anxiety or depression during admission.⁣
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I am that patient! 🙋🏾‍♀️⁣
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Again, thank you @ddwmeeting for the wealth of IBD knowledge! ⁣
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And to think, this was ONLY day 1️⃣!⁣
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More post to come recapping my experience at DDW2023! 📚 🔬 💊⁣
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#AGAIBDInfluencer #HereforDDW #DDW2023 #COCCI #IBD #ulcerativecolitis #chronicillness #invisibleillness #crohns disease #crohns #ibdvisible #ileostomy #worldibdday #ostomy #jpouch

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Foi um grande prazer encontrar pessoalmente a Dra. Aline Charabaty, Gastroenterologista do Johns Hopkins Hospital, no ECCO 2023. Dra. Aline tem desenvolvido um belo trabalho de disseminação do conhecimento em Crohn e Colite. #ECCO2023

It was a great pleasure to meet Dr. Aline Charabaty, Gastroenterologist at John Hopkins Hospital, at ECCO 2023. Dr. Aline has developed a nice work of disseminating knowledge on Crohn's and Colitis. #ECCO2023 @mondaynightibd @scrubs.n.heels

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#ECCO23 was everything I was hoping for & beyond

So I am spilling the beans on the best kept secret in the #IBD world 😉

🔥Dynamic leadership #ECCO #YECCO
🔥 Scientific sessions
🔥Practice changing & thought provoking research
🔥Diverse speakers from all career stages
🔥#WomenInGI well represented #WomenStrong
🔥Effective Networking
🔥Authentic friendships
🔥Refreshing global perspectives
🔥& Yes #IBDologists can dance late into the night 💃🏻🕺🏼

#IBD #Crohns #UlcerativeColitis #IBDCommunity #StrongerTogether #Friendtors #MondayNightIBD #MedEdWithoutBorders #WomenInGI #DiversityInGI #RepresentationMatters

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We are excited to host the next session of SAIA's IBD Journal Club on Friday, March 10th at 12 Noon CST! Tune in on @ ibdclub on Twitter to join in and participate in the following conversation:

Dr. Mehak Bassi, GI Fellow, Saint Peter’s University Hospital / Rutgers University, USA, reviews the article Long-Term Outcomes of Early vs Delayed Responders to Vedolizumab and Adalimumab: A Post Hoc Analysis of the VARSITY Study! The article was published in American Journal of Gastroenterology in January 2023 and can be accessed here: https://doi.org/10.14309/ajg.0000000000001987

IBD Journal Club on Twitter (@ ibdclub), founded by Tauseef Ali, MD (Co-Director of SAIA's Professional Development Committee) is a virtual journal club encompassing wide-ranging, clinically relevant papers in IBD. As a #SAIA initiative, IBD Journal Club has now recruited several GI fellows with interest in #IBD and #SouthAsia to develop professional education with a greater focus on culturally relevant issues.

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📣 Calling all #IBD patients & caregivers! 📣

Join @crohnscolitisfoundation @amergastroassn and myself this upcoming Thursday, February 9th at 7pm EST / 4pm PST for IBD Insider! 🤩

IBD Insider brings you the latest updates from the recent Crohn’s & Colitis Congress, which took place in Denver, CO, to help #IBD specialists understand all the cutting-edge research and clinical practices to provide the best care to us patients.

And as an added bonus, pediatric gastroenterologist Dr. Sabina Ali along with colorectal surgeon Dr. Neil Hyman, Sophia of @theprincesspromise & yours truly will be joining and sharing summaries of various sessions at the conference.

To help us patients and #caregivers learn about the latest and advocate best for our own care, register in the #LinkinBio to join us next Thursday! 🙌🏽🙌🏽

#SouthAsianIBDAlliance #IBDesis #CCCongress23 #patienteducation #patientadvocacy #crohns #ulcerativecolitis #jpouch #fistula #ostomy #colorectalsurgery #biologics #mentalhealth #diet #nutrition

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How do we tie a bow on this weekend?

We’re 💪🏽 proud to continue to partner with exceptional #WomenInGI leaders, #Mallies, rising stars, industry, and supporters. Most importantly, we couldn’t have #ScrubsNHeels without YOU!!

We brought the #Friendtor🔥heat 🔥 to California with our team.
Co-Founder: Dr Aline Charabaty
Co-Founder: Dr Anita Afzali
Co-Chair: Dr Aja McCutchen
Co-Chair: Dr Amy Oxentenko

We came together to show each other more layers of the onion of our authentic self. It’s ok to be vulnerable, dust yourself off and remind yourself we come out EMPOWERED💪🏽

#ScrubsNHeels23 summit is packing it up here in Terranea Resort with a full toolbox 🧰, reignited 🔥, pep in our step👠, and gratitude in our 💝!

Do no harm; take no 💩

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#FindYourTribe #WomenInGI #WomenStrong #WomenEmpoweringWomen #ScrubsNHeels #SheLeadsHealthcare #Gastroenterology #WomenWhoScope #WomenInMedicine #SheLeads #SheForShe #HeForShe #WomenInLeadership #WomenInspiringWomen #WomenInspiringMen

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It’s safe to say every prep for a colonoscopy is a s*#$ show. The show just looks a bit different each time.

I just completed another annual colonoscopy, and the process still keeps me on my toes, even after more than 17 years of living with Crohn’s disease.

As those of us with IBD know, it’s so much more than the prep.
🥺It’s the anxiety of wondering if our disease is active.
🫣It’s the worry about whether our IBD is going to act up and be triggered by the ungodly amount of laxative we are ingesting in one sitting.
😑It’s the fear of going through more trauma getting an IV and dealing with nurses and a care team we are unfamiliar with.
😔It’s resenting the fact that you’re a young person needing a colonoscopy…and the list goes on.

This week on Lights, Camera, Crohn's I share my advice for advocating for yourself throughout the process, how I managed this time around, and my latest tips for getting through it. I hope you learn a thing or two so your next scope goes smoother. 💜 Click the link in my bio for the full article!

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A bit of Xmas cheer in the endoscopy suite to get into the festive spirit. Happy holidays 2022.

#ibd #crohns #colitis #ulcerativecolitis #crohnsdisease #ulcerativecolitisawareness #inflammatoryboweldisease #gastroenterology #colon #coloncleanse #colonoscopy #endoscopy #ostomy #londonontario #ldn #ldnont #MedEd #medtwitter #nurselife #doctors #physician #medical #medicalschool #medicalstudent #gastro #endoscopiadigestiva #medicine #xmas #christmas #doctor

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Are you a #caregiver for an #IBD patient? Are you an IBD patient who is also a caregiver? If so, this event is for you!! 🧡💙

This National Family Caregivers Month, SAIA's Patient Advocacy arm, IBDesis, in collaboration with Improve Care Now, is excited to organize a virtual meet up of our #SouthAsianIBD community! 🙌🏽

We invite all members of our community to join us for a free-flowing conversation about being Ecaregivers for IBD patients, the challenges of understanding the condition as well as being caregivers whilst living with IBD. These are incredibly challenging roles to navigate and we want to reassure every member of our community that you are not alone 🙏🏽🙏🏽

We at SAIA are truly committed to a meaningful patient-clinician collaboration. To move beyond the clinician-patient hierarchy and foster conversations, we are bringing together an amazing team of doctors and patients to lead this conversation 💚💜

Our team includes:

Dr. Shehzad Saeed, Associate Chief Medical Officer at Dayton Children's Hospital, Clinical Director at Improve Care Now and caregiver for a #Crohns patient

Dr. Sabina Ali, Medical Director of the IBD Program at UCSF Benioff Children’s Hospital, Board of Directors of South Asian IBD Alliance and Improve Care Now & patient living with #ulcerativecolitis

The conversation will be moderated by:

Sharan Khela, Crohn's Patient Advocate from the UK & Board of Directors of South Asian IBD Alliance

Join us on Saturday, November 12th at 8am PST / 11am EST / 4pm BST / 9pm PKT / 9:30pm IST to meet and interact with our clinician and patient team as well as community members! 💥

Register using this link to join us on November 12th! https://forms.gle/uewH2aAkXjgoCEx6A

We hope this event helps us feel more supported, less alone in our #caregiving journeys and brings us all together as a community! After all, we cannot pour from an empty cup and it is vital that we take care of ourselves and our needs as caregivers 🙏🏽

We look forward to meeting you all!

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Think back to what you felt like when you were told you needed medication to treat your IBD.

We all experience a wide range of emotions, pushback, and fears. But, managing IBD with medication is often necessary.

This week on Lights, Camera, Crohn’s we hear from well-respected registered IBD dietitian and ulcerative colitis patient extraordinaire, Stacey Collins (@staceynellc_rd), about how she breeches this subject with patients and caregivers and how she utilizes her own patient journey to help empathize with those who are struggling to take the plunge.

“If someone wants to work with me on their nutrition “instead of medication,” I try to understand where the person is coming from. Usually, it’s from a place of fear, or uncertainty, and I really affirm that experience and hold space with them. Medications, side effects, accessibility, and adherence…it can all be so…heavy. There’s plenty of room to hold those two truths: meds are hard. And they’re often necessary.”

Click the link in my bio to read the full article.🙌🏻

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