This message will be scrolling atop the Philly skyline today, tomorrow (May 12th), and Wednesday (May 13th) to highlight the lack of treatments/cures for myalgic encephalomyelitis (misnamed chronic fatigue syndrome and sometimes called ME/cfs)— a debilitating condition involving neuroimmune and metabolic dysfunction, often triggered by an infection such as C19.
Too many have suffered for too long! We need biomedical research investments to find effective treatments/cures!
#LightUpforMEcfs #WorldMEDay #MillionsMissing #MEcfsAwareness #MEcfs
Video description: a video of the PECO building in downtown Philadelphia, PA USA at dusk which has a banner of a scrolling lighted messages at the top. This video shows the message “ME/CFS Awareness Day - No FDA Approved Treatments, No Cure - SolveME.org”
5 months agodrcarlygoldberg
@kelly_george_coaching feel free to DM me. Also, I organize with @meactnet and we have a PA chapter. https://www.meaction.net/pennsylvania
5 months agokelly_george_coaching
This is so amazing! I want to know more about how to get involved and help out in Philly in particular. I’m in the Philly suburbs. I’ve been recovered for about a year and a half.
5 months agobushbaby3255
This is fabulous! Kudos to whoever made this happen. Brilliant new book just released explaining the complexity of ME for medical professionals, friends and family. With first hand accounts by 80 folks with ME re the multifaceted disabling effects of this illness. Please purchase and give to all those who need better understanding of the disabling illness. https://pillowwriters.wordpress.com/2026/05/09/wimel-publication/
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